It’s been a while. Where do I start?

My health is great.

I recently had my annual scans and I remain cancer-free.

Life does go on and I am lucky to not be suffering as others are through this awful disease.

The thoughts are always in the back of my mind that my health may not be stable, it may be at it’s peak ready to pull my legs out from under me.

But they are far and few between.

Thank you for stopping by, for caring. Feel free to reach out, I care.

Into Fall and a New Place

The world is relentless in that it wants to continually move forward, not back, and not stand still.

I find myself now living with family in Ontario, 4,000km from where my cancer journey started.

A new place filled with hope and shiny things. Well, hope at least. Instead of being 330km from my doctors, I hope to be much closer although the process for getting seen by an oncologist seems daunting.

I have to wait for my OHIP (government health care) to begin, then the search for a family doctor begins. It is this physician that can then refer me to an opthalmologist (to check my eye?) who can then either make the appointments for my cancer check-up or refer me yet again to another doctor/specialist.

Currently I am waiting for a call back from the Princess Margaret Hospital to have, I hope, a streamlined plan set up so that some of this hunting and waiting is eliminated.

It’s not just having cancer, or an eye removed, that is worrisome. It’s not having the medical support around in case anything happens in the meantime. Between screenings, I mean.

This is a major change in my life and I am scared.

Ocular Melanoma in the News

Ocular Melanoma Liver Metastasis Pathway
Ocular melanoma is a rare cancer, with an incidence of approximately 7 cases per million population per year. In the UK there are 4 supra-regionally funded …

Quality of Life – Retirement: A Full-Time Job
Yesterday, I learned more about ocular melanoma than I’ve ever known before. This article in the New York Times brought back all those memories and gave …

NY Times Article on Genetic Testing to OM. | Melanoma Research
Some people are starting to talk about “living with” Stage 4 ocular melanoma as a possibility. If tumors are detected early, and treated, maybe one can live long …

CE | 20/20 Magazine
Severed optic nerves, ocular melanoma, detached retinas, pterygia, orbital fractures…these are some of the catastrophic injuries and diseases that occur when …

Genetic test identifies if your eye cancer will spread

Cancer tumor test says it can identify, with 97% accuracy, whether your ocular melanoma will spread to other parts of your body.

“When the cancer spreads beyond the eye, it’s unlikely any therapy is going to be effective,” says principal investigator J. William Harbour, MD. “But it’s very possible that we can develop treatments to slow the growth of metastatic tumors. The real importance of this test is that by identifying the type of tumor a patient has, we can first remove the tumor from the eye with surgery or radiation and then get those individuals at high risk into clinical trials that might be able to help them live longer.”

Read more…