But where there is eye pain and also new tumors can be found again in the same eye, which is what happened to me. A second tumor was found early in the year and proton radiation treatment a second time was declined by me. I recently has my eye removed.
Options vary by region and many doctors do not have enough experience with specific eye cancers to offer realistic treatment options. Many doctors simply say it’s lose the eye or do nothing and hope the cancer doesn’t spread.
Best wishes.

Here is our story. Sister had retinal melanoma. Went to dr gragoudas at mass eye and ear. Had the proton therapy and it worked well. Cancer was
killed. But she had excruciating pain in the eye. Continued for four months. Local eye doctor sent us back to mass eye and ear. Dr. Gragoudas was offended that we
were asking for options to try to releive the pain. He stood up and yelled “how dare you question me, I have done 4000 of these
surgeries and you dare to ask me for options” Asked if she could have the tantalum rings removed to see if that would releive the pain. He yelled that the only reason
he would go back into surgery would be to remove her eye. “Call me when the pain is soo bad that she wants the eye taken out” I asked again about other options. He stood up again and said
I won’t even discuss this any further, I will take the eye out and that is that and he stormed out of the room. Couldn’t believe he was such a
pompous jerk. We weren’t confrontational, just wanted to know all the options available. Still don’t know how he could
remove a perfectly good eye rather than try to exhaust every possible option first. Nope, the eye comes out or he would do nothing.

We left and had a minute where we were able to talk with staff. They told us that he had taken out a man’s eye the week before because of eye pain. Horrified us to think that this
man may have lost is eye due to the arrogance of a haughty doctor.

Wondering how many other patients lose their eye when all options aren’t even considered first. We have no idea if the removal of the tantalum rings (surgically implanted to direct the proton radiation and usually
left in the eye after radiation is finished) will aleviate the pain, but she is willing to take the chance before removing the eye. Dr in California said that it could be
possible that the body is rejecting the rings and causing the pain. COuld also be the tumor shrinking and pulling on inside of the eye. But the only way to know is to remove the rings, so it seems that would be the first choice
of any sane person.

If removing the rings solves the problem would want to be able to let people know they don’t have to have the eye removed. Not sure how to find out how many people have had eye removed by pompous doctors. WOuld welcome any information you can provide.
Would also like to know if anyone has had the rings removed and if so why. Not sure how to do that either.
Look forward to any comments.

Debbie