Once again I find myself at the Vancouver Eye Care Clinic. It’s been a long day, now 6hours in and three eye tests and examinations with more to come yet.
These exams will help me to decide if I should take the final step and have my eye removed, end the associated, recurring pain and move on to my next battle, fine fiber neuropathy.
All will be revealed over the next 24 hours. I do have some interesting images of me eye to share, I’ll post them once I am home again.
Today was not a good day.
It seems that the new medicine is losing it’s effectiveness. Or my neuropathy is getting tougher to deal with.
I don’t like either option.
More later. It hurts to type.
I am having a hard time with the pain.
I am currently taking 1200mg of gabapentin 4 times a day, the maximum dose my neurologist said I could take. My next appointment with her, my neurologist, is December 2. That’s right, just about 9 months away.
I haven’t seen her in about 18 months. I’m almost certain that she didn’t suspect that this pain would progress as much as it has, but waiting is part of the game now.
Of course, I will be calling her office every day to see if there is a cancelled appointment that I can get.
Such is life.
The Pain Experience
The joints in my hands feel like they are, alternately, being pushed apart and compressed.
My face feels like it is swollen.
My feet are very cold and sore.
There is very little relief throughout the day.
My concentration is shot, carrying thoughts are often very difficult. And, apparently, I have mood swings.
Not only does it suck to be me but it also sucks to be around me.
At least it’s almost bed time, there will be some relief if I can get some sleep.
I have read as much as I can about this “disease” or “disorder” that I have been diagnosed with (besides cancer) and am now turning to you for help.
I want help with the pain I have that is associated with “Idiopathic Peripheral Neuropathy” and I want your help.
Not good wishes, not more stories of how you, or someone you know, has this too. I want help.
Help with the pain, help with dealing with this in a way that doesn’t drive me, or my loved ones, to drink or worse (whatever worse could be).
What do I do to deal with this pain? The tingling and pins & needles that strike me all the time, hands, feet, arms, legs, head, face…