Daily Archives: November 18, 2006

3 Weeks Later

It’s 3 weeks and a couple of days since my last proton radiation treatment.

At first, except for the tiredness, I felt great. It was good to be back home, start the regular routine again.

Now, the “sunburn effect” has started on my left lower eyelid. Have you ever had a sunburn so bad that your skin felt so dry as to seem like it was cracking open? This is what I now feel.

It started 2 weeks to the day of the last radiation treatment. The “sunburn effect” grew quickly. Not so bothersome at first but after a few days, then a week… WOW. The pain from how the eyelid skin feels it won’t let me sleep.

I take an Avdil every few hours to help to keep the swelling down. I ice my eye when the pain gets real bad. And I have a moisturizing cream that the pharmacist suggested, it’s fragrance free, non-oily too, which makes a big difference in how the eyelid reacts to the moisturizer. I was using a scented cream but it really stung. As well, I still have eyedrops to take 3 times a day to help the eye heal. Scented cream at the rim of the eyelid, mixed with eye drops, is a type of sting that no one should have to endure.

If I could only sleep at night… ahh….

Pupil monitor

Pupil monitor

You can see how the areas of my visible right eye (during treatment, because of the loss of central vision in my left eye, the ‘tracking monitor’ was watching my right eye instead of my left eye that has the tumor) are marked on the monitor.

Should I lose the flashing light that I must train my eye at to be certain the proton beam is directed correctly, the doctors will immediately put a stop to the beam so as to not cause additional damage to my eye. It’s only the tumor we want, not the whole eye.

A patient not being able to maintain his aimed eye line during the treatment increases his chances of losing the eye. Fully 1/3 of proton radiation treatment patients have to have the treated eye removed. This is usually due to the tumor killing the eye before the radiation kills the tumor, I believe. Hey, staring at a flashing light at the edge of your vision for 90 seconds seems easy at first…. but it isn’t.

Two monitors are used

Two monitors that are watching Rob during the proton radiation treatments

The proton radiation treatments are monitored from a short distance. No one wants to be in the same room as the patient (for safety and health reasons) during the actual radiation treatment.

The patient (me) is watched for panic in the left monitor (as well I have a panic button in my hand once I am positioned into place and the mask is set) and in the right monitor my right pupil is seen enlarged. Should my vision move outside of the allowed areas, as seen from the marks on the pupil monitor, the treatment will be immediately stopped so as not to send the proton beams to an area that is not the tumor.

Watched via monitor

Rob seen on monitor during his setup in chair

Rob getting setup as seen in one of the monitors that are used to watch the proton radiation procedure by the doctors, assistants, physicists and visitors to the TRIUMF center.